Archive for the ‘Blogs’ Category

Still here kicking around and plodding on with life, nothing really to report other than I have my scan results on the 20th. Finally my mind will be at rest since 15th Dec, thats right, I had my scan on 15th Dec and finally get my results next week!! Unfortunately this is the state the NHS has got in to.

Forgot to post happy valentines and a post a saw today reminded me, it said…

” To my wife, I love as much today as I did yesterday but it is a lot cheaper lol”

So I hope everyone who was able had a happy valentines day, to all those who have lost loved ones or currently battling this horrible fight, I wish you the best for the future.

All the best,

Derran

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While Christmas may be over, I do hope those who could had a good one. For those who didn’t I wish you all the best for the future. For some reason this time I am not calm about going for my results in January, usually I don’t care but I feel something is different this time, keeping fingers crossed! Anyway, new year is on it’s way so I will continue as I have done before and celebrate what I have now and how lucky I am to a certain degree (I don’t like using the word lucky as none of us are)

So once again, I wish you all a Happy New Year and hope 2018 is a better one.

15th december 2017

Another MRI scan completed today, a little snooze in a magnetic tube courtesy of the NHS Nottingham City Hospital. Scan went fine as usual but won’t get scan results until January 2018. Slight bruising left around vein this time which is unusual as they are pretty good at not leaving a mark, no bleeding so no big issue there.

While looking at the facebook support groups I am part of, someone had posted information about Gadolinium poisoning from contrast dye causing serious health issues and in some cases hospitalisation. Ever scan I have has had contrast dye used but I am not sure which one, I have seen Gadolinium on paperwork from previous scans but it is not mentioned on the one today. I’ve not has any side affects so wondering if anyone has?

With recent discussions regarding my health I thought I haven’t updated the blog in a while. So here it is 🙂

The last blog mentioned..

“My Lamotrigine has been increased from 150mg twice a day to 175 twice a day to see if they will help my seizures. Give that a month and if no change, to increase that to 200mg twice a day, failing that, they will be reduced and another tablet introduced.”

Since then I have been to see my Epilepsy specialist nurse for medication review, not on the exact date but at some point my Lamotrigine was increased to 200mg, then 225mg and now it will be 250mg twice daily. Keeping fingers crossed that this will help as not much has happened being on 225mg other than the strength of the seizures. If this does not work then Zonisamide will be introduced, scary isn’t it? sounds like I am going to be Zombiefied!!

My aim really is get the frequency down from every 10 days to as far as I can as I want my driving licence back.

I’m sure many of you are in the same boat and understand what I am really saying deep down, people not in our situation don’t understand the loss this is and how it affects everything you want to do.

However, must keep positive as I have been luckier than a lot of others. If you can and are able (like me) to get out and about, take time to step away from the rat race. I’ve been trying and my photography hobby has increased somewhat.

One of my favourite seaside towns, Whitby looking through a whale jaw bone at the ruins of Whitby Abbey.

Take care everyone and bye for now 🙂

Well, just a quick update. Not posted for a while as you might see but I am still here and well. My Lamotrigine has been increased from 150mg twice a day to 175 twice a day to see if they will help my seizures. Give that a month and if no change to increase that to 200mg twice a day, failing that, they will be reduced and another tablet introduced.

The only news I got at present is that on Sunday 9th April 2017 I had two seizures, both were light but one at 4pm and one at 9pm. Seemed to be no link but may have missed a dose of tablets as I get confused some days or busy and forget. This shouldn’t be a problem because the oncology specialist nurse say that the change won’t affect you that quick. It would be interesting to know how many have this issue.

Luckily I get free tablets but that must be costing the NHS a fortune!

I’m on yearly MRI scans now so nothing to report on that front, hope you all are doing well and bye for now.

 

The date 23rd July 2016 marks the 2nd anniversary of having surgery to remove a brain tumour. While an anniversary usually celebrates a happy occasion, this is  something worth celebrating as I have had no further growth.  For some it will be a fight for survival, surviving or in my case waiting on that time bomb to go off. For some odd reason it had affected me this year when usually thinking and talking about it normally doesn’t. Keeping fingers crossed it will be better next year as next scan is in September and result will be about end of October/early November.

In order to mark this occasion I am releasing an ebook. The ebook is slightly different to this blog as it covers a little more on the personal side of the experience.

LIFE WITH MY BRIAN-Living With A Brain Tumour

I wish all patients and families who are going through this journey all the best and hope you get some good news.

Anniversary

Posted: June 4, 2016 in Blogs

The date 3rd June 2016 marks the 2nd anniversary of being diagnosed with a brain tumour. While an anniversary usually celebrates a happy occasion, this is certainly not something worth celebrating but more of a marker. A marker in time where your life changes forever. For some it will be a fight for survival, surviving or in my case waiting on that time bomb to go off. For some odd reason it had affected me this year when usually thinking and talking about it normally doesn’t. Keeping fingers crossed it will be better next year.

A change

Posted: April 22, 2016 in Blogs
Tags: , , , , , ,

Not been online lately as it can get depressing reading about other people’s brain tumours so decided to give it a break and take up new hobby. I’ve always used nitro engine powered rc cars and found a little project nitro powered plane. Spent quite a bit of time researching it and got it running. While being enjoyable it has also taken my mind off things. Here is a before picture and in the future if I don’t crash it I will post an after pic.

So for all you brain tumour sufferers out there what do you do to take your mind off things.

image

My Recent Development

Posted: April 2, 2016 in Blogs

15th March 2016, now 1yr 8 months post operation latest MRI scan results show little to no change. Any change that has been seen has been attributed to scar tissue.  Appointments have now been chan…

Source: My Recent Development

Sounds a bit morbid doesn’t it? well not today, feel like being a bit positive after a walk with my camera. Since surgery I’ve not really been out and about doing the hobby I love so I decided it was about time even though a little rusty with the camera. Sometimes I think it will do good to focus on something other than the unwanted lodger and more what you can still do so here are a few pics taken recently…

Daylight followed by afternoon light and then stages of sundown(dying light)