Archive for the ‘Life After Surgery’ Category

After having surgery I was advised that there are a number of things that could happened and I would need MRI scans every 3 months and reviews on medication every 6 months. The things that could happen are…

  • Become seizure free
  • Seizures could be slight
  • Seizures could be worse due to scaring on brain

Luckily up to now I have only had slight seizures every so often especially if I miss a dose of medication or take it too late.  The seizures started off very slight and you wouldn’t know I was having one.  These have started getting stronger but nowhere near as bad as they was and they do not affect what I am doing at the time I have them.

At the moment my eyes flicker to left and I may move my head but I am able to talk and do things while it is happening, usually I will try to hide it as it passes in a about 10 seconds.

Due to the fact that in the past I have had grand mal seizures I am unable to get my driving license back until I am a year free of minor seizures. It does have benefits as I can now be taxied everywhere and can drink :).

For now life will continue as it has before but “Life moves pretty fast. I do stop and look around once in a while, as I don’t want to miss it.” 😉

Hope you enjoyed this rather long winded true story, I will update it as things happen until the time comes when I can’t.

Other blogs will be information that might be of help so for now that’s it and have a listen to this…

Life without brian.

 

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With recent discussions regarding my health I thought I haven’t updated the blog in a while. So here it is 🙂

The last blog mentioned..

“My Lamotrigine has been increased from 150mg twice a day to 175 twice a day to see if they will help my seizures. Give that a month and if no change, to increase that to 200mg twice a day, failing that, they will be reduced and another tablet introduced.”

Since then I have been to see my Epilepsy specialist nurse for medication review, not on the exact date but at some point my Lamotrigine was increased to 200mg, then 225mg and now it will be 250mg twice daily. Keeping fingers crossed that this will help as not much has happened being on 225mg other than the strength of the seizures. If this does not work then Zonisamide will be introduced, scary isn’t it? sounds like I am going to be Zombiefied!!

My aim really is get the frequency down from every 10 days to as far as I can as I want my driving licence back.

I’m sure many of you are in the same boat and understand what I am really saying deep down, people not in our situation don’t understand the loss this is and how it affects everything you want to do.

However, must keep positive as I have been luckier than a lot of others. If you can and are able (like me) to get out and about, take time to step away from the rat race. I’ve been trying and my photography hobby has increased somewhat.

One of my favourite seaside towns, Whitby looking through a whale jaw bone at the ruins of Whitby Abbey.

Take care everyone and bye for now 🙂

The holiday was a great holiday and we were camping for two weeks, such relief to get the kids out of your hair. It would have been a killer staying at home for the remainder of the school holidays.

With me having a keen interest in photography and my feeling in my hand and fingers back to normal, I was able to use the camera properly again (which was important to me).  If I have lost the use of left hand I don’t know what I would have done.

I like landscapes…(from holiday)

SONY DSC

Sunset

With me getting better week by week I was able to go back to work full time 5 weeks after the op.  It was suggested by surgeon that I go back part time after 6 weeks if I felt ok and if not I could be signed off longer.

My employer had been really supportive over the whole process from diagnosis to operation and recovery so I decided to go back full time on 1st Sept 2014.

At first it was weird being back as you had just been through a major ordeal, not feeling 100% right and people not sure how to approach you.  To break the ice I just spoke about it freely and made a laugh and joke about it such as…

Staff : How you feeling?

Me : Glad to be back, it’s a weight off my mind!

Jokes such as this continued, questions asked and soon enough it was like I had never been off or had an operation.

see to present day.

The first week after being released was a simple case was sitting around bored, resting and sleeping when I could, due to resting a lot I was advised to keep my sexy compression stockings on which is understandable.

26th July 2014 I was able to sit out in the back garden enjoying the sunshine relaxing in the shade and had the pool out for the kids also dipping my feet.  Was really great to get out for a bit.

With the passing of each day things got better and in the first week you can have your staples out.  Now some people may be worried about this and I was certainly anxious but there was no need.  There was no pain at all and all I felt was a kind of pinch sensation. The concerning thing for me is when I walked in to have them removed I had a newly qualified doctor who looked very nervous and taking a drink of water before proceeding – lol

With them being removed you can then wet the scar and give it a bit of clean providing there was no problem with the scar healing.  A sigh of relief as mine was fine and I could now clean my head, they say you shouldn’t submerge the scar and just dab it with a wet flannel at first. You can have a bath of shower before removal but you have to cover the scar, you just can’t wet the head as it will delay the healing process…

cropped-ouch.jpg

Cleaning the head was great as it relieved a little of the tightness and you could finally get rid of the iodine, dried blood and the protective spray they put on.  In my case it was very hard to get rid of the dried blood as it was stuck to the hair and wouldn’t loosen.  Trying to loosen the dried blood did work to a certain extent but it also removed some of the hair which made the scar look bigger, I started losing hair around the scar which I assumed was because it was just killed off because of the surgery. Not looking too bad though…

After Washes

Not sure if it is the same with everyone who has head surgery but mine did weep a little and scab over, you have to try your best not to scratch, pick or catch them when washing as it could open up part of the wound. Unfortunately on one occasion I did catch a scab which has now left a bald patch…

Recent Scar

By the end of the first week I had enough of being stuck in so phoned the hospital and asked if it is too early to go on holiday in UK.  This was fine as long as I took care and didn’t fly.  We decided to go camping near a holiday park that our friends were staying at as it would make the holiday better if we also had support should anything happen or be needed.

see subsequent weeks…

Time To Go Home

Posted: September 12, 2015 in Time To Go Home
Tags: ,

After spending two day and one morning it was time to go home – yay! (so fed up of being in there).  Despite being able to walk I was told to take it easy and use a wheelchair to leave the hotel courtesy of the NHS. My wife had to get car and bring it around the front to reduce walking distance for me but the car park was quite full. This didn’t stop the taxi drivers taking up spaces for dropping off and picking up of patients and therefore forcing my wife to park in a different space that I had to walk to.

Getting in the car was such a wierd feeling (if you remember your head feels huge and your spacial awareness all over the place), and oh boy those bloody head rests do nothing for resting your head.  The journey home was terrible due to the fact that you are very uncomfortable and can feel every bump in the road.

The first stop before going home was to the supermarket to get a foam based neck brace, new pillows and an electric toothbrush – bye dog breath!. I really would suggest getting a neck brace and some really soft pillows, the nice puffy ones 🙂

When we arrived home the first thing was to brush my teeth and have a nice cool drink (weather was really hot for UK), second was to get the bed all nice and comfortable with a fan passing cool air over the bed. No matter what I did I couldn’t get comfortable but it was far better than being in the free hotel for sick people. After a while I did manage to get comfortable and drift in and out of sleep.

This continued for a few days and nights and every day getting better but I was expecting some sort of pain and it never happened, just a tightness of skin over the skull and staples, the feeling of pressure in head and the neck issue that is unexplainable. Something I did notice was that control over my left hand was an issue and fingers being the worst, I couldn’t text properly, couldn’t type properly and even tried and games console to pass the boredom. This is when I started to feel a bit more emotional, frustrated, angry and unfortunately it was released towards my family.

My wife tried to be supportive but I found every little thing bugged me and even worse it was the kids school holidays which really did wind me up (that I took the blame for as I chose a bad time to agree to have surgery.  My wife stayed supportive and tried everything to make me happy and comfortable and still does so today (12th Sept 2015), she really did put up with a lot from me and was a rock.  I do not know what I would have done without her by my side! If you are in a position where you need brain surgery or similar, I really stress that you should plan for after care, to start with I couldn’t even make a basic snack such as toast.

See the first week…