Archive for the ‘Updates’ Category

The date 23rd July 2017 marks the 3rd anniversary of having surgery to remove a brain tumour. While an anniversary usually celebrates a happy occasion, this is  something worth celebrating as I have had no further growth.  For some it will be a fight for survival, surviving or in my case waiting on that time bomb to go off. For some odd reason it had affected me this year when usually thinking and talking about it normally doesn’t, at Christmas my scan results confused the neurology team and gave me a bit of a scare, it was sent to a team of experts who reviewed it and came to the conclusion that it had not changed. Keeping fingers crossed it will be better this year as next scan will be around December and results about Januray.

 

I wish all patients and families who are going through this journey all the best and hope you get some good news.

Well, just a quick update. Not posted for a while as you might see but I am still here and well. My Lamotrigine has been increased from 150mg twice a day to 175 twice a day to see if they will help my seizures. Give that a month and if no change to increase that to 200mg twice a day, failing that, they will be reduced and another tablet introduced.

The only news I got at present is that on Sunday 9th April 2017 I had two seizures, both were light but one at 4pm and one at 9pm. Seemed to be no link but may have missed a dose of tablets as I get confused some days or busy and forget. This shouldn’t be a problem because the oncology specialist nurse say that the change won’t affect you that quick. It would be interesting to know how many have this issue.

Luckily I get free tablets but that must be costing the NHS a fortune!

I’m on yearly MRI scans now so nothing to report on that front, hope you all are doing well and bye for now.

 

My Recent Development

Posted: April 2, 2016 in Blogs, Updates

15th March 2016, now 1yr 8 months post operation latest MRI scan results show little to no change. Any change that has been seen has been attributed to scar tissue.  Appointments have now been chan…

Source: My Recent Development