Posts Tagged ‘grade 2’

After having surgery I was advised that there are a number of things that could happened and I would need MRI scans every 3 months and reviews on medication every 6 months. The things that could happen are…

  • Become seizure free
  • Seizures could be slight
  • Seizures could be worse due to scaring on brain

Luckily up to now I have only had slight seizures every so often especially if I miss a dose of medication or take it too late.  The seizures started off very slight and you wouldn’t know I was having one.  These have started getting stronger but nowhere near as bad as they was and they do not affect what I am doing at the time I have them.

At the moment my eyes flicker to left and I may move my head but I am able to talk and do things while it is happening, usually I will try to hide it as it passes in a about 10 seconds.

Due to the fact that in the past I have had grand mal seizures I am unable to get my driving license back until I am a year free of minor seizures. It does have benefits as I can now be taxied everywhere and can drink :).

For now life will continue as it has before but “Life moves pretty fast. I do stop and look around once in a while, as I don’t want to miss it.” 😉

Hope you enjoyed this rather long winded true story, I will update it as things happen until the time comes when I can’t.

Other blogs will be information that might be of help so for now that’s it and have a listen to this…

Life without brian.

 

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Well, just a quick update. Not posted for a while as you might see but I am still here and well. My Lamotrigine has been increased from 150mg twice a day to 175 twice a day to see if they will help my seizures. Give that a month and if no change to increase that to 200mg twice a day, failing that, they will be reduced and another tablet introduced.

The only news I got at present is that on Sunday 9th April 2017 I had two seizures, both were light but one at 4pm and one at 9pm. Seemed to be no link but may have missed a dose of tablets as I get confused some days or busy and forget. This shouldn’t be a problem because the oncology specialist nurse say that the change won’t affect you that quick. It would be interesting to know how many have this issue.

Luckily I get free tablets but that must be costing the NHS a fortune!

I’m on yearly MRI scans now so nothing to report on that front, hope you all are doing well and bye for now.

 

15th March 2016, now 1yr 8 months post operation latest MRI scan results show little to no change. Any change that has been seen has been attributed to scar tissue.  Appointments have now been changed from 6 monthly checkups to 9 month checkups.  While this a small victory for me it is quite a hollow one compared to what I’ve read recently. Three years ago I wouldn’t have looked twice at brain tumour issues specifically(but i’ve always given to cancer research).  With this month being brain tumour awareness month there has obviously been a lot of focus on this, the stories I’ve read put mine to shame and I am so lucky mine is what it is.  Sounds a bit strange as a brain tumour is devasting in it’s own way for both patient and family.

I have been spreading awareness myself and including this blog website in hope that it will make people aware.

15th Sept 2015 – To Present Day updated with latest scan result.

15th Sept 2015 – Medication updated with more info and picture.

15th Sept 2015 – Recovery – The First Week updated with picture.

16th Sept 2015 – Info – links to support.

16th Sept 2015 – Brain Tumour – types and mine.

22nd Sept 2015 – Medication – Medication Update

26th Sept 2015 – Info – links to support.

10th October 2015 – News – Treatment

25th November 2015 – Info-  brain tumour charity website and brain tumour charity facebook group

23rd December 2015 – Blogs – various new/alternative technology/treatments

19th February 2016 – Blogs – Positivity

31st March 2016 – Blogs – Dying Light